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Build-UK Chat Forums Committed to providing a site that is safe for everyone affected by motor neurone disease (MND).
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Erica Frequent Contributor

Joined: 15 Oct 2005 Posts: 585 Location: East Anglia
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Posted: Mon May 22, 2006 11:45 am Post subject: |
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Thanks, Paul. Pity though..................  _________________ May the sunshine keep breaking through for us on cloudy days |
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jim Regular Contributor

Joined: 04 Feb 2005 Posts: 272 Location: rochdale
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Posted: Wed Jul 05, 2006 1:45 pm Post subject: |
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I gave my sample the other week. its quite easy - your gp does it so you dont need to go to sheffield or wherever
jim |
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Rob Highly Active Contributor

Joined: 27 Nov 2004 Posts: 1538 Location: Nottinghamshire,UK
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Posted: Tue Jul 11, 2006 8:40 am Post subject: |
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DNA bank passes the 1,000th sample mark
10 July 2006
DNA Bank Logo
A trail-blazing DNA Bank set up to help research into Motor Neurone Disease has collected its 1,000th sample.
The MND DNA Bank and National Database, launched by the MND Association to speed up worldwide research into the condition, has also inspired a similar initiative in the US.
The aim of the UK bank is to create a collection of blood samples from people with MND, their family members and other healthy individuals by 2009. This will be the basis of an inexhaustible supply of genetic material that can be used by scientists trying to find out the causes of, and a cure for, MND.
The DNA Bank was set up in 2004 with funding from the MND Association, and with the support of collecting centres in hospitals across the UK. It will enable scientists to discover which genes make a person susceptible to MND and why their motor nerve cells degenerate.
Though the collected samples are not yet in use, the bank has already had a significant impact on worldwide research activities. Researchers in the US have agreed to create a similar resource, funded by the US government. The North American DNA Bank is to be based on the Association's DNA Bank model, which means that the two resources can be used collectively.
Dr Brian Dickie, Director of Research Development at the MND Association, said: "The DNA Bank was an ambitious project, and its success has been down to the willingness of people with MND and their family members to donate samples, and of hospitals to become collecting centres.
"Although this 1,000 samples represents a third of the 'core' samples we are looking to collect, we still need more, and we are looking at expanding the number of collecting centres and ways in which people can contribute.
"We are also looking this year at how we promote the samples to scientists to encourage them to research MND.”
http://tinyurl.com/ewn6e _________________ "There is no such thing in anyone's life as an unimportant day." |
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Erica Frequent Contributor

Joined: 15 Oct 2005 Posts: 585 Location: East Anglia
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Posted: Wed Oct 08, 2008 11:37 am Post subject: |
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I've now been told by my MND Care Centre that I CAN give a sample. I wish they'd make their minds up.................I wonder if the local Prof. Hawking influenced them...........  _________________ May the sunshine keep breaking through for us on cloudy days |
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Jennifer51 Forum Regular
Joined: 14 Sep 2008 Posts: 63 Location: London England
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Posted: Fri Jan 02, 2009 10:50 am Post subject: databse blood sample |
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I was asked to give blood for the database and they came to my home...I was still pretty mobile at the time, but they still came to me and took both mine (bulbar) and my husbands blood (control).
I have a twin brother and they were going to take his, but he lives 150 miles away and they could not coordinate that and told us that the response for samples had been wonderful.
2009 the year of the CURE....PLEASE |
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